Equity, Diversity, and Data Science in Genomics Workshop Agenda | Carl R. Woese Institute for Genomic Biology

Tuesday, September 3 – Thursday, September 5, 2019
I Hotel and Conference Center, 1900 1st St, Champaign, IL 61820

Hosted by the Carl R. Woese Institute for Genomic Biology (IGB) and the National Human Genome Research Institute (NHGRI)
Download a copy of the agenda here.

Day 1 – Tuesday, September 3rd
Location: Illinois Ballroom

	Opening Session
4:00 – 4:30pm	Welcome address and workshop introduction Drs. Gene Robinson (IGB) and Lawrence Brody (NHGRI)
4:30 – 5:00pm	Dr. Ruby Mendenhall, University of Illinois at Urbana-Champaign
5:00 – 5:30pm	Dr. Carl Gunter, University of Illinois at Urbana-Champaign
5:30 – 6:30pm	Evening reception with hors d’oeuvres
6:30 – 8:00pm	Public Forum: Artificial Intelligence, Health, & Society Rashida Richardson, Director of Policy Research, AINow Institute Dr. Karrie Karahalios, Professor of Computer Science, University of Illinois at Urbana-Champaign Andrew Paley, Computer Science PhD Student, Northwestern University
8:00 - 9:00pm	Dessert Reception

Day 2 – Wednesday, September 4th
Location: Chancellor Ballroom

8:30 – 8:40am	Introductory remarks (Dr. Gene Robinson, IGB)
8:40 – 8:50am	Welcome Address (Dr. Susan Martinis, University of Illinois at Urbana-Champaign)
	Session 1: Technical Challenges and Opportunities with Genomic Data Science and Diverse Communities (Moderator – Dr. Saurabh Sinha, University of Illinois at Urbana-Champaign)
8:50 – 9:00am	Introduction (Dr. Saurabh Sinha)
9:00 – 10:00am	Session 1 Presentations Dr. William Southerland, Howard University “The Interaction Between Genomic Data Science and Diverse Communities: Technical Challenges and Opportunities” Dr. Jeff Leek, Johns Hopkins University “Lessons Learned Trying to Democratize Data Science Education as an Economic Intervention” Dr. Julia Stoyanovich, New York University “Data, Responsibly” Dr. Sandra Rodriguez-Zas, University of Illinois at Urbana-Champaign “Technical Challenges & Opportunities with Genomic Data Science & Diverse Communities: A Data Analytics Perspective”
10:00 – 10:40am	Discussion open to all participants
10:40 – 10:50am	Coffee break
	Session 2: Social and Policy Issues regarding Genomic Data Privacy, Security and Access (Moderator – Dr. Carl Gunter, University of Illinois at Urbana-Champaign)
10:50 – 11:00am	Introduction (Dr. Carl Gunter)
11:00am – 12:00pm	Session 2 Presentations Dr. Shawneequa Callier, George Washington University Deven McGraw, Citizen Corporation “Privacy Laws Protecting Genetic/Genomic Data” Rashida Richardson, Director of Policy Research, AINow Institute “Social and Policy Considerations in Achieving Diversity in Genomic Research” Dr. Arif Harmanci, U. Texas Health Science Center at Houston “Privacy Implications of Functional Genomics Data”
12:00 – 12:40pm	Discussion open to all participants
12:40 – 1:30pm	Lunch break
	Session 3: Implementation of EHRs and Genomic Medicine in Diverse Communities (Moderator – Dr. Rana Hogarth, University of Illinois at Urbana-Champaign)
1:30 – 1:40pm	Introduction (Dr. Rana Hogarth)
1:40 – 2:40pm	Session 3 Presentations Dr. Teresa Zayas-Cabán, Office of the National Coordinator for Health Information Technology “Making Interoperability Work for Genomic Research and Genomic Medicine” Dr. Siddharth Pratap, Meharry Medical College “Implementing a Medical Genomics Process at a Small Inner-City Hospital” Dr. Casey Overby Taylor, Johns Hopkins University "Clinical decision support for genomic unsolicited health information" Dr. Samuel Aronson, Partners Healthcare “Current and Potential Future Directions in Digital Care Transformation”
2:40 – 3:30pm	Discussion open to all participants
3:30 – 3:45pm	Coffee break
	Session 4: Recruitment and Retention of Diverse Communities for Data-Intensive Genomics Research (Moderator – Dr. Ruby Mendenhall, University of Illinois at Urbana-Champaign)
3:45 – 3:55pm	Introduction (Dr. Ruby Mendenhall)
3:55 – 5:10pm	Session 4 Presentations Dr. Vanessa Hayes, Garvan Institute “Engagement, Recruitment and Retention - Lessons from southern Africa” Dr. Maui Hudson, The University of Waikato “Building Trust, Accountability & Equity in Genomic Science in Aotearoa New Zealand” Dr. Jennifer Raff, University of Kansas “Respectful Research with Ancestors: Approaches to Working with Indigenous Communities from Anthropological Genetics” Dr. Consuelo Wilkins, Vanderbilt University “Are You Trustworthy Enough?” Dr. Karriem Watson, University of Illinois at Chicago “Engaging African American Men as Citizen Scientists to Advance Diversity in Prostate Cancer Research”
5:10 – 5:50pm	Discussion open to all participants
5:50 – 6:00pm	Wrap-up of Day 2 discussions (Drs. Robinson, Brody and session moderators)
6:30 – 8:00pm	Dinner at IGB, Room 612 (1206 West Gregory Drive, Urbana, IL 61801)

Day 3 – Thurday, September 5th
Location: Lincoln Room

8:30 – 8:50am	Setting continuity from Day 2 (Drs. Gene Robinson and Lawrence Brody)
	Session 5: Genomic Data Science Professions and Workforce Development (Moderator – Dr. Ripan Malhi, University of Illinois at Urbana-Champaign)
8:50 – 9:00am	Introduction (Dr. Ripan Malhi)
9:00 – 10:00am	Session 5 Presentations Dr. David Boone, University of Pittsburgh “Broadening Participation in Data Science and Genomics through High School and Undergraduate Internship Programs” Dr. Herman Taylor, Morehouse School of Medicine “The Leaky Pipeline for Genomics and Data Science Professionals” Dr. Sarah Myers West, AI Now Institute “Discriminating Systems: Diversity and Inclusion in AI” Dr. Ripan Malhi “The SING (Summer internship for INdigenous peoples in Genomics) Program as a Model of Culture Change in STEM”
10:00 – 10:45am	Discussion open to all participants
10:45 – 11:00am	Coffee break
11:00 – 11:50am	Recommendations for NHGRI
11:50am – 12:00pm	Closing Remarks (Drs. Gene Robinson and Lawrence Brody)